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Author Topic: Cervical Stenosis: Panic Mode Initiated  (Read 21637 times)
Raguel
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on: May 14, 2015, 06:03:07 AM

So, I've been suffering from a host of issues since I was a teenager, but mostly it's chronic headaches/pain all over and all the joyous mental health issues that spring from that.

This week I found out I have cervical stenosis. I was in such pain I didn't ask a lot of questions; I was just thinking "here's another doctor who thinks she knows what's wrong with me and is going to inject me with something that's going to have zero affect on my condition".  I do remember her saying it was in many places but mainly she talked about C-7.

Wednesday I did what no lay person should. I started googling.  why so serious? From what the doctor said it sounded like only the nerves were compressed but from my symptoms it sounds like it's cervical spinal stenosis. I called the office today and one of her worker bees should call me today and clarify this.

When I first started writing this post I was freaking out, because stenosis is degenerative and  paralysis (I'm assuming quadriplegia since it's the neck area)  is a possibility.  Now I just feel relieved that it's not just in my head. I really do have medical issues and it's not psychosomatic.
Paelos
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Reply #1 on: May 14, 2015, 06:17:38 AM

Been there. I started googling because the doctors had no idea. It made things so much worse in one respect, because you focus on the 5% absolute worst possible outcome. If you already have anxiety it just gets worse.

The good news is that you have to remember these things don't move fast. You have time to get a good handle on what they are going to do. Doctors will not wait if things are dramatically serious. You have to trust that while they are looking and observing you, you are giving them good information. Here's what I recommend.

1 - Keep a symptoms journal with you at all times. Log your symptoms when you get them. Log what you were doing. Log what you were eating.
2 - Look for patterns. If you notice that certain things are casuing certain symptoms, report those causes.
3 - Realize that your condition is treatable, and making sure you are treating the right thing is paramount. I know all to well the wish for doctors to just do something, but just doing something can make things way worse if they are wrong.

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HaemishM
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Reply #2 on: May 14, 2015, 02:34:51 PM

Googling anything about a medical condition you may have or think you may have is perhaps the single worst use of Google ever. You are almost guaranteed to give yourself goddamn panic attacks from that shit regardless of how much or how little is affecting you.

Tannhauser
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Reply #3 on: May 14, 2015, 02:40:37 PM

Very true.  But I did actually find out what I was suffering from on WebMD.  But it was a minor medical issue taken care of by outpatient surgery and a few months of healing. 

I was thinking of making a 'medical' website and, no matter what symptoms you put in, some form of cancer was the cause.  Oh ho ho ho. Reallllly?

Hang in there Rag!  I hear gaming is therapeutic!
Nebu
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Reply #4 on: May 14, 2015, 03:52:50 PM

My best advice: Get a referral to a specialist before reacting.  Multiple opinions are always best if you can afford them.

"Always do what is right. It will gratify half of mankind and astound the other."

-  Mark Twain
Raguel
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Reply #5 on: May 14, 2015, 04:02:50 PM

My best advice: Get a referral to a specialist before reacting.  Multiple opinions are always best if you can afford them.

The doctor I'm seeing works at a pain management center. I'm not sure what her specialty is (I'm assuming you meant neurologist).

I know better than to google stuff, but I did it anyway.   Ohhhhh, I see. Some ear test tech told me I might have Meniere's (sp) and I was tripping for weeks.

Also there are tons of diseases that have the same symptoms I'm showing. AND I HAVE EVERY ONE OF THEM.

At the risk of having this thread moved: I have a chemistry degree I haven't used because I'm so clumsy (I break glassware and spill chemicals all over myself) and my anxiety goes through the roof just from applying to an opening, I lost my highest paying job ever due to dizziness/nausea/chronic headaches, I've spent all my savings and finally, now that I'm on Obamacare,  hopefully someone has figured out what's wrong with me.

So Fuck you U.S. health care system, Fuck you  Republicans, and thanks Obama.

Nebu
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Reply #6 on: May 14, 2015, 04:16:14 PM

So Fuck you U.S. health care system, Fuck you  Republicans, and thanks Obama.

This, I agree with. 

My guess is that you'll likely want to consult a neurologist, orthopedist, and possibly and orthopedic surgeon.  I do hope that you get both answers and a resolution.

"Always do what is right. It will gratify half of mankind and astound the other."

-  Mark Twain
Paelos
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Reply #7 on: May 14, 2015, 05:06:55 PM

Neurologist first. And I say that because after all was said and done with my problems it was the neurologist that found the root cause. But before that he ran MRI's on my head and neck to rule things out, did ALS tests, and did all sorts of strength tests.

The Neuro will be a big help if it's what you think it is.

Here's a key question I have, are you sleeping? How is your sleep? Do you wake up a lot? Do you ever wake up gasping for breath? Do you have dreams you remember?

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Raguel
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Reply #8 on: May 14, 2015, 05:14:21 PM

I have sleep apnea if that's what you're getting to. I have wild dreams sometimes. I used to have nightmares every night before I got my cpap. I figure it was my brain's way of waking me up so I could breathe.


No phone call either today. I guess I'll call or walk in tomorrow.
« Last Edit: May 14, 2015, 05:16:19 PM by Raguel »
Morat20
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Reply #9 on: May 14, 2015, 05:44:25 PM

Googling anything about a medical condition you may have or think you may have is perhaps the single worst use of Google ever. You are almost guaranteed to give yourself goddamn panic attacks from that shit regardless of how much or how little is affecting you.
It has ups and downs. On the one hand, there was my brother's cancer thing which had me depressed for weeks until the diagnosis was in. Because there are a LOT of cancers out there, and quite a number of them are "Welp, you're fucked".

On the other hand, I managed to figure out some weird medical issue my wife and her mom have simply because I got tired of wondering "Is that shit contagious?". (No).

Not really worth the weeks of "Oh shit, CANCER KILLS EVERYONE" followed by "Oh shit, I could have cancer RIGHT NOW. My stomach hurts. IS IT CANCER, WHICH KILLS PEOPLE.".

On the gripping hand, I'm pretty sure Doctor's use the shit out of WebMD.
Pagz
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Reply #10 on: May 14, 2015, 05:44:59 PM

My dad had a situation where he was feeling sharp pain all over and the doctor couldn't find anything wrong for months and said it was all in his head. Turns out he had cancer, whoops  Ohhhhh, I see..

Not saying you have cancer, get lots of opinions and be confident in how you feel, that those feelings are real and that it's not normal, you will find someone who will find the cause.

Also not to hippy shit up the thread but try a (good) naturopath as well. Throughout any of my family members treatment they will swear on some of their methods to ease pain, and while I don't know if it's placebo or not it's worth a try.
Raguel
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Reply #11 on: May 14, 2015, 05:57:45 PM

I've had at least the headaches and fatigue/burning in shoulders/arms for decades now so I don't think it's cancer but thanks for giving me something else to fear.  awesome, for real


I've already tried acupuncture (on doctor's orders; what a waste of time. I think she was just running out of ideas. And OMG those needles hurt, don't let them lie to you.). Homeopathy just sounds too inane for be to bother with.
Torinak
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Reply #12 on: May 14, 2015, 06:06:57 PM

I was thinking of making a 'medical' website and, no matter what symptoms you put in, some form of cancer was the cause.  Oh ho ho ho. Reallllly?

That site already exists, it's called every "medical" website ever. They're pretty much all about maximizing "user engagement" and "capturing eyeballs" these days (as it makes them more money). And what gets more attention, the "10 signs you might have gas" or "The Guatemalan Gutbuster parasite [now with video]! Click here to learn the ten signs of DOOM!"

IMO, researching symptoms without a diagnosis in hand is probably not helpful. For every anecdote about the neighbor's friend's cousin whose web-searching helped them catch cancer in time, there are probably thousands of people who had sleepless nights, demanded expensive and unnecessary tests, and who damaged what little doctor-patient rapport existed because their doctor wouldn't chase down every single disease they read about on some "medical" website.

It could even cause active harm when one becomes fixated on a specific condition one reads about, usually something very very serious and very rare. The more one "researches" it, the more one is prone to form false memories of symptoms that happen to match those of the condition, and to ignore or suppress memories of ones that don't match. That makes getting an accurate diagnosis even harder as it can send even a good doctor on a wild goose chase.
Nebu
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Reply #13 on: May 14, 2015, 06:13:04 PM

Medical websites can be helpful if you have at least some working knowledge of human physiology.  The problem I see with them is that many common chief complaints could be caused by any of a thousand things.  There's a reason that people are trained for years to be physicians.  It takes practice to turn indications and data into a proper differential diagnosis. 

Unfortunately, the primary thing that I learned in medical school was just how terrible most physicians are at their job. 

"Always do what is right. It will gratify half of mankind and astound the other."

-  Mark Twain
Paelos
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Reply #14 on: May 14, 2015, 06:54:04 PM

I have sleep apnea if that's what you're getting to. I have wild dreams sometimes. I used to have nightmares every night before I got my cpap. I figure it was my brain's way of waking me up so I could breathe.


No phone call either today. I guess I'll call or walk in tomorrow.

OK so you are on CPAP. That answers that. And did your symptoms get better or worse after doing that?

How's your weight and activity? Bloodwork show anything odd? Have you seen an endocrinologist yet about possible thyroid and/or hormonal concerns?

Also, do you take B-vitamins? Some of the stuff you're describing could be related to neuropathy which can be related to bad diet.
« Last Edit: May 14, 2015, 06:57:10 PM by Paelos »

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Raguel
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Reply #15 on: May 14, 2015, 07:14:33 PM

I have sleep apnea if that's what you're getting to. I have wild dreams sometimes. I used to have nightmares every night before I got my cpap. I figure it was my brain's way of waking me up so I could breathe.


No phone call either today. I guess I'll call or walk in tomorrow.

OK so you are on CPAP. That answers that. And did your symptoms get better or worse after doing that?

How's your weight and activity? Bloodwork show anything odd? Have you seen an endocrinologist yet about possible thyroid and/or hormonal concerns?

Also, do you take B-vitamins? Some of the stuff you're describing could be related to neuropathy which can be related to bad diet.

As far as sleep apnea is concerned I still get sleepy during the day. I wake up less during sleep but it's still bad. I'm in the process of getting a new machine (although it's taken over a year; thanks Obama  why so serious?)

Morbidly obese and very little activity, mostly because of pain. I'm now diabetic but besides that I can't think of anything. There was some concern about my GI but it's just inflammation and diet related. I'm supposed to stay away from dairy and  eat more fruit, which does lessen but not eliminate the pain.

I'm on B complex.
Paelos
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Reply #16 on: May 14, 2015, 07:27:39 PM

Yeah when I went through my pain/numbness/scary twitching phase, we learned it was almost entirely sleep apnea and awful diet. That cascaded into overuse of caffeine and spiraled out of control.

A big key for me was getting my electrolytes in order, eating foods with more potassium, getting more calcium from non-dairy like almond milk, and decreasing my sugars. Oh and getting sunshine and walking did wonders for the anxiety and twitching. I found the healthier my lifestyle got, the better my symptoms got. Even with small steps.

But really the biggest key was the sleep. Getting 8 hours unbroken or mostly unbroken turned a ton of this around. Sleep is so key so if that's still not working I'd focus there the most if the MRIs are clean.

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Raguel
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Reply #17 on: May 14, 2015, 08:28:41 PM

Yeah when I went through my pain/numbness/scary twitching phase, we learned it was almost entirely sleep apnea and awful diet. That cascaded into overuse of caffeine and spiraled out of control.

A big key for me was getting my electrolytes in order, eating foods with more potassium, getting more calcium from non-dairy like almond milk, and decreasing my sugars. Oh and getting sunshine and walking did wonders for the anxiety and twitching. I found the healthier my lifestyle got, the better my symptoms got. Even with small steps.

But really the biggest key was the sleep. Getting 8 hours unbroken or mostly unbroken turned a ton of this around. Sleep is so key so if that's still not working I'd focus there the most if the MRIs are clean.

I'm pretty sure the doctor used the MRI to determine it was stenosis but like I said I was in so much pain I really wasn't paying attention.

My next appt. with my primary isn't until late June but Im going to call them and see if I can get a referral to a ortho
Raguel
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Reply #18 on: May 14, 2015, 08:30:44 PM

So Fuck you U.S. health care system, Fuck you  Republicans, and thanks Obama.

This, I agree with. 

My guess is that you'll likely want to consult a neurologist, orthopedist, and possibly and orthopedic surgeon.  I do hope that you get both answers and a resolution.

I forgot to mention that I'm also seeing an ENT who thinks my headaches may be sinus related. On his card it says he does neck surgery, so I was going to ask him about stenosis and cervical vertigo. It sounds like you think he's not the right guy to talk to.
Abagadro
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Reply #19 on: May 14, 2015, 10:55:22 PM

<Costanza> Lupus? Is it lupus?  </Constanza>

Sorry.  That sucks. I've been in the "unknown medical condition that no one can figure out but is fucking incredibly painful" boat. It's not fun and I got put through the ringer on a bunch of bullshit uncomfortable tests but they ultimately figured it out once I got to the right doc.

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HaemishM
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Reply #20 on: May 15, 2015, 09:34:39 AM

It's always lupus.

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Reply #21 on: May 15, 2015, 09:45:33 AM

You insensitive clod. My oompa-loompa had lupus.

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Reply #22 on: May 15, 2015, 09:49:08 AM

Crazy question, have you had an xray or mri of the area? If you have a stenosed Vertebrae at the point it's causing those problems it should be pretty obvious. Like obvious to the point where a little kid could look at it and see something wrong.

Also, lose weight, do whatever you have to do to do it. That'll probably take care of your apnea too.

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Raguel
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Reply #23 on: May 15, 2015, 10:53:17 AM

Crazy question, have you had an xray or mri of the area? If you have a stenosed Vertebrae at the point it's causing those problems it should be pretty obvious. Like obvious to the point where a little kid could look at it and see something wrong.

Also, lose weight, do whatever you have to do to do it. That'll probably take care of your apnea too.

I know for sure I've had x ray of my cervical vertabrae and MRI of the brain but I don't remember for certain if there was an MRI for the neck. I haven't been keeping track because I just gave up hope.

I've been unsuccessful keeping the weight off (in the last year i've lost 50 lbs, gained them back, then lost 20 ) but I'm going to keep trying.
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Reply #24 on: May 15, 2015, 11:06:07 AM

I'm guessing you overeat like me.  In working to lose and change my lifestyle I've started to realize that avoiding triggers and old enablers are biggies that often require a clean break in some ways.  I'm going to have to dump some things from my life, it's going to suck. Thing is, it will be worth it.  Try to find the strength to do so if your case is similar.

The past cannot be changed. The future is yet within your power.
Sir T
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Reply #25 on: May 15, 2015, 08:03:18 PM

Last year i had a serious urine condition (basically i was urinating blood) and i overheard one of the doctors noting that i had a small prostate gland.

One google later i went around for 3 days almost convinced I had prostate cancer...

Never again.

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Raguel
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Reply #26 on: May 15, 2015, 08:58:52 PM

I googled my doctor; she's a DO. That sounds like a chiropractor (osteopathy). That good feeling is fading fast.

None of her minions have called me back either.

eta: Fellowship Trained in Interventional Pain Management
« Last Edit: May 15, 2015, 09:03:37 PM by Raguel »
Nebu
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Reply #27 on: May 15, 2015, 09:26:54 PM

I googled my doctor; she's a DO. That sounds like a chiropractor (osteopathy). That good feeling is fading fast.

None of her minions have called me back either.

eta: Fellowship Trained in Interventional Pain Management

DO is essentially a general practitioner in states that recognize a DO as an MD equivalent.  Get yourself a referral to a specialist. 

"Always do what is right. It will gratify half of mankind and astound the other."

-  Mark Twain
Raguel
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Reply #28 on: May 15, 2015, 11:00:28 PM

I googled my doctor; she's a DO. That sounds like a chiropractor (osteopathy). That good feeling is fading fast.

None of her minions have called me back either.

eta: Fellowship Trained in Interventional Pain Management

DO is essentially a general practitioner in states that recognize a DO as an MD equivalent.  Get yourself a referral to a specialist. 

Will do. My next appt with my primary isn't until late June so I hope he won't make me wait until then to get new referrals.
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Reply #29 on: May 16, 2015, 01:00:50 AM

One thing I will say about the stenosis diagnostic is that you shouldn't let the word stenosis scare you as much as it seems to be doing.  I have stenosis in several of my lumbar vertebrae.  It is actually fairly common and the word is overused.  They use stenosis as a generic term to describe any buildup of materials between the vertebrae, or any kind of pinching of the nerves due to compression.  In and of itself, it does not mean that your bones are about to fuse together or that it is directly causing you pain or discomfort.  In my case, the diagnosis is plain old "spinal stenosis", and the key difference here is that the spinal cord itself is not involved.  For cervical stenosis, the real question to ask is "is this compressing my actual fucking spinal cord?" because that is what is the cause of concern.  Just having stenosis in the cervical area means nothing at all if it isn't smashing your cord.  The difference is really about whether it is the soft tissues becoming inflamed and pinching nerves, or if it is your vertebrae directly causing the issue.  Do anti-inflammatory meds work on you?

Also, your weight is the cause of 90% of your issues.  Including and especially your neck/back pain.  And your diabetes.  And your sleep apnea.  You know this already, so why not focus more on the root of the problem rather than the resulting symptoms?  You will NEVER be rid of these issues when you are, as you describe yourself, morbidly obese.

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Raguel
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Reply #30 on: May 16, 2015, 01:30:11 AM

One thing I will say about the stenosis diagnostic is that you shouldn't let the word stenosis scare you as much as it seems to be doing.  I have stenosis in several of my lumbar vertebrae.  It is actually fairly common and the word is overused.  They use stenosis as a generic term to describe any buildup of materials between the vertebrae, or any kind of pinching of the nerves due to compression.  In and of itself, it does not mean that your bones are about to fuse together or that it is directly causing you pain or discomfort.  In my case, the diagnosis is plain old "spinal stenosis", and the key difference here is that the spinal cord itself is not involved.  For cervical stenosis, the real question to ask is "is this compressing my actual fucking spinal cord?" because that is what is the cause of concern.  Just having stenosis in the cervical area means nothing at all if it isn't smashing your cord.  The difference is really about whether it is the soft tissues becoming inflamed and pinching nerves, or if it is your vertebrae directly causing the issue.  Do anti-inflammatory meds work on you?

Also, your weight is the cause of 90% of your issues.  Including and especially your neck/back pain.  And your diabetes.  And your sleep apnea.  You know this already, so why not focus more on the root of the problem rather than the resulting symptoms?  You will NEVER be rid of these issues when you are, as you describe yourself, morbidly obese.

Yeah I'm waiting on clarification with respect to the spinal cord. She only mentioned the nerves though so I'm hoping it's not the spinal cord.

I've never taken any medication that affect my headaches and chronic pain, including vicodin, norco, and whatever it was my dentist gave me after pulling my wisdom tooth out. And it's not just headaches, neck and back pain. I have chronic pain pretty much everywhere.

I don't deny that my weight is a problem, but the thing is with the exception of diabetes I've had most of these symptoms since I was a teenager, and I wasn't morbidly obese then.

In my other thread I talked about how my respiratory issues started (I still haven't gotten a proper referral for a lung function test, so I don't know if I have bronchitis to add to my asthma).

when I was a teenager I essentially got in a fight and someone hit me on the left side of my head with a two by four. Ever since then I've had chronic headaches and fatigue/burning in my arms.  (As a sidenote I didn't start the fight and to this day I have no idea what their beef was with me. One day we'd be friends playing football and the next they wanted to fight me).

So basically since I was a teenager (15? I don't remember) I've had chronic pain and chronic respiratory issues.
« Last Edit: May 16, 2015, 01:47:10 AM by Raguel »
Cyrrex
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Reply #31 on: May 16, 2015, 08:45:57 AM

What about steroidal nsaids or cortisone?  Ever tried any of those , other than the over the counter stuff?

"...maybe if you cleaned the piss out of the sunny d bottles under your desks and returned em, you could upgrade you vid cards, fucken lusers.." - Grunk
Raguel
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Reply #32 on: May 16, 2015, 09:08:17 AM

What about steroidal nsaids or cortisone?  Ever tried any of those , other than the over the counter stuff?

I remember being injected with either botox or cortisone; pretty sure it was botox though.

TBH I didn't keep track of all the meds I've been given for the headaches.
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Reply #33 on: May 16, 2015, 01:58:33 PM

Well, I think botox is actually A) totally toxic and B) something you inject into your face so that you can appear on Real Housewives of Santa Barbara  awesome, for real

Cortisone (and others of this ilk) is a powerful steroid that you inject because it has really good anti-inflammatory properties.  This, and many other types of nsaids (non-steroidal anti-inflammatory drugs) and even steroid pills work specifically because they combat the inflammation that causes nerves to get squished, pushed or otherwise pinched.  A goodly portion of all back pain is caused by inflammation which impacts the nerves, so it is only logical to try some of this medication.  Muscle relaxers can have a similar effect, but will of course make you loopy and are less likely to be prescribed I imagine.

I do not know what your doctors have seen, but I would begin to look at this sort of thing were I you.  Even start with some over the counter stuff and see what that does, just make sure you are taking enough.

"...maybe if you cleaned the piss out of the sunny d bottles under your desks and returned em, you could upgrade you vid cards, fucken lusers.." - Grunk
Raguel
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Reply #34 on: May 16, 2015, 02:11:59 PM

Well, I think botox is actually A) totally toxic and B) something you inject into your face so that you can appear on Real Housewives of Santa Barbara  awesome, for real

Cortisone (and others of this ilk) is a powerful steroid that you inject because it has really good anti-inflammatory properties.  This, and many other types of nsaids (non-steroidal anti-inflammatory drugs) and even steroid pills work specifically because they combat the inflammation that causes nerves to get squished, pushed or otherwise pinched.  A goodly portion of all back pain is caused by inflammation which impacts the nerves, so it is only logical to try some of this medication.  Muscle relaxers can have a similar effect, but will of course make you loopy and are less likely to be prescribed I imagine.

I do not know what your doctors have seen, but I would begin to look at this sort of thing were I you.  Even start with some over the counter stuff and see what that does, just make sure you are taking enough.

I've taken aspirin and ibuprofen before; neither they or acetaminophen have helped much. I don't remember the dosage on either tho so I might try again.

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